In addition to Alström Syndrome International, there are organizations across the globe which serve individuals with Alström Syndrome and their families regionally:
ASI Brazil
SMPW quadra 17 conjunto 7 lote 1 casa G
Park Way
CEP: 71741-707
Brasília-DF
Brasil
Email:
fa******@ho*****.com
Telefone: +55 61 999839275
Alström Syndrome Canada
RR#2 Box 204
Finch, Ontario
Canada K0C 1K0
Linda Holland:
li**************@gm***.com
Palmer Douglas:
pa***********@ou*****.com
ASI Deutschland
Dr. med. Sebastian Beck
Kinderarztpraxis im Blauen Haus
Hauptstr. 138
CH-8280 Kreuzlingen
Email:
be************@gm***.com
France Alström
70 bis rue du Général de Gaulle 95 370 Montigny Les Cormeilles Email: fr************@fr**.fr Website: france.alstrom.free.fr
ASSAI – ASsociazione Sindrome di Alström Italia
Alström Syndrome Japan
5-23 Karasubashichou Fushimiku Daigo Kyoto, Japan 601-1315 Email: lo**@re*****.jp Website: rei-rei.net
Stichting Alström Syndroom (Netherlands)
Email:
mi*****@he****.nl
Website: www.alstrom.nl
Alström Spain
Email:
al**********@gm***.com
Website: www.alstromspain.org
Alström Sendromu Dernegi (Turkey)
Alström Syndrome UK
31 Shearwater Drive
Torquay, Devon TQ2 7TL
Email:
in**@al*****.uk
Tel: 01803 613117 / 01709 210151
Website: www.alstrom.org.uk
Chief Executive Officer: Ann Chivers
Spanish Speaking Stakeholder Initiative
Chair: Chase A. Palmer, PharmD
Yiuvany Aquilar, RN, BSN, HN, BC
Susana Cañas, Alström España
Augusto Cárdenas Roja, BS
Javier Cazalilla Expósito, MD
Leticia Freeman, BSN, RN
