News & Articles
Families from around the world
We have families from 16 countries attending our 7th Annual conference, including this nice group from Turkey chatting with Nevin Bengur here in the lobby.
ASI is on-site and ready to go
Families are starting to roll in to the 7th Annual Alström Syndrome International Family & Medical Conference— old friends have started getting reaquainted and new
It’s finally time!!!
We are extremely excited that the 7th Alstrom Syndrome Family and Medical Conference is starting up on May 9th!, just a few short days away!
Lubbock family copes with rare genetic disease
By Ellysa Gonzalez 4-year-old Lubbock girl lives with Alstrom Syndrome Five-and-a-half months after her daughter Bryce was born, Cassie Johnston began noticing a strange pattern
A Call for Items for the ASI Silent Auction!
The 2013 International Conference in Plymouth, MA is fast approaching, and here’s your chance to help insure it’s a success. We’re looking for items for
Drop by Drop, Lubbock Family Makes a $30,000 Lake for Rare Disease
Lubbock family turns a devastating diagnosis into a West Texas-sized lake for research. LUBBOCK, Texas – Jan. 25, 2013 – What if your child was
Happy Holidays to All from Alström Syndrome International!
From all of us at Alström Syndrome International, we wish everyone the Happiest of Holidays and the best of luck into the New Year! The photo
ASI Family Conference
2013 AGENDA – INCLUSIVE -12-01-2012 Dear Families and Friends, The 7th International Family Conference is just “around the corner” (May 9-13)! Many of you have
BJ receives successful heart-lung transplant !!
Please check out this wonderful news about BJ receiving her heart-lung transplant! She asked that we share her story with the Alstrom Family and is
Two runners for ASI in the New York City Marathon
Greetings! I am very excited to report to you all that we have TWO runners in the upcoming New York City Marathon (Sunday November 4)
