News & Articles
YOU are the heroes who will make this happen!!
Dear Alström Family, Many thanks for the compliments following our posts about the Precision Medicine Initiative. A few members need to understand that the work
Alstrom Syndrome International ON THE MOVE!
Barack Obama, President of the United States, has announced a new initiative called the Precision Medicine Initiative. What he was really talking about was making
Vote for Alstrom Angels to win a $10,000 donation for research!
CitiBank in Lubbock Texas will donate $10,000 to the winning charity. LET’S MAKE SURE THAT ALSTROM ANGELS IS THAT CHARITY! Keep those votes coming Alstrom
Palmer competes in OFSSA
Congratulations to Palmer for successfully competing in the Ontario provincial cross country championships (OFSSA), Nov 2014 in Waterloo, Ontario, Canada. Palmer ran in the Para
ASI’s Sandra Hubbard-LeBlanc receives the Katharine Pearson award ‘shining example’ of caregiver
Sandra Hubbard-LeBlanc, mother of Cheryl, member of Alström Syndrome International Board, and chair of ASI’s Canadian branch, received the Katharine Pearson Shining Example Award for promoting
Today is National White Cane Day!
Let’s take a moment to admire all of the adults and adolescents with Alstrom Syndrome who are experts in white cane and other adaptive skills! Let’s
2016 – Eighth Alstrom Syndrome International Conference
ASI Conference – Plymouth Massachusetts May 13-16, 2016 ASI is already well into plans and planning for the 8th International Family Conference that will be
ASsociazione Sindrome di Alstrom Italia (ASSAI)
ASsociazione Sindrome di Alström Italia (ASSAI) ASSAI Officially Organized! First meeting of ASSAI Learn more about ASsociazione Sindrome di Alström Italia
International Rare Disease Day 2014
Today is International Rare Disease Day! Spread the word, raise awareness for Alström Syndrome. Wishing you all a productive day for our cause!! Rare Disease