News & Articles
Upcoming Alstrom Syndrome Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC) in September
PLEASE NOTE: THIS CLINIC WILL BE FOR THOSE 1 -12. Anyone is welcome! Information and consults will be in English. WE NEED TO HEAR FROM
Alström Syndrome in the News
Rhythm Pharmaceuticals Announces New Topline Clinical Data from Ongoing Phase 2 Basket Studies Evaluating Setmelanotide in Rare Genetic Disorders of Obesity Further Improvements Observed in
Get yourself excited about the 2019 ASI Conference!
Come get excited about The 9th Alström Syndrome International Conference in Galveston, TX by checking out this amazing highlights video from the 2016 Conference in
Upcoming Alstrom Syndrome Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC)
PLEASE NOTE: THIS CLINIC WILL BE FOR THOSE 17 AND UP. WE NEED TO HEAR FROM YOU BY FEBRUARY 25! BACKGROUND As many of you
Update on the July 3 Memorial for Jan Marshall
Dear Friends and Neighbors, Many, but certainly not all, of you are aware that for 33 years I, with my wife Jan by my side,
July 3 Memorial for Jan Marshall – Full Details!
Dear Erica, Alstrom Family, Players and Friends, APOLOGIES!! I am sorry to have been largely MIA since last Fall. As most know, Jan passed away
Memorial Concert for Jan Marshall, July 3, 2017!
Come one, come all, and join us at Camp Beech Cliff, Mount Dessert Island, ME on July 3! We’ll be having a memorial concert and
Save the Date!
Save the date! The 9th Alström Syndrome International Conference May 2-6, 2019 Galveston, TX, USA Venue: Hotel Galvez Details to come!
Conference Videos Online!
Hi All, I just wanted to let everyone know that we’ve got some wonderful videos of the 2016 ASI International Conference that folks can check
ASI Signs 21st Century Cures Sign-On Letter
Alström Syndrome International was one of over 200 patient and research associations that signed this letter of support for moving the 21st Century Cures legislation forward in the