News & Articles
We Support Rare Disease Day
February 28th is Rare Disease Tuesday, which Alstrom Syndrome International supports. https://www.rarediseaseday.org/
Alstrom Update – Please Donate
The mission of ASI is: To provide support, information, and coordination world-wide to families and professionals to treat and cure Alström Syndrome. Update from Alstrom
Research Findings Provide Insights – The Alstrom Syndrome Journey
In the course of their effort to advance trial participation and to ultimately gain approval for the anti-hyperphagia drug Setmelanotide, Rhythm Pharmaceutical, with the cooperation
FDA post EL-PFDD event survey
Hello everyone! The FDA post EL-PFDD event survey is ready to go. This survey should be completed by people who did not attend in person
Alström Syndrome International (ASI) Externally Led-Patient Focused Drug Development (EL-PFDD)
September 22, 2022 8:30am – 3:00pm Dear Alström Family, Voices of the People – The Alström Syndrome Journey Alström Syndrome International (ASI) Externally Led-Patient Focused
Inaugural Alstrom Syndrome Pediatric Multidisciplinary Clinic at Indiana University in Indianapolis
Background As many of you are probably aware, in 2015, ASI realized its long-held dream of establishing an Alstrom Syndrome Center of Excellence at Greater
Inaugural Alstrom Syndrome Pediatric Multidisciplinary Clinic at Indiana University in Indianapolis
Please note: this clinic will be for those 3 to 17 as of June 1. Background As many of you are probably aware, in 2015, ASI realized
Upcoming Alstrom Syndrome Multidisciplinary Clinic in September 2021
Upcoming Alstrom Syndrome Multidisciplinary Clinic at the Jan D. Marshall Center of Excellence for the Treatment of Alstrom Syndrome at Greater Baltimore Medical Center (GBMC).
Updates on Information, Opportunities, and an Important Save the Date
Dear Family, I deliberately used the word “denizens” above because the most common definition is “inhabitant.” However, one also finds “one admitted to residence in
Giving Tuesday is here!
Giving Tuesday is here, and it’s a time we can all get behind ASI and help meet our fund-raising goals. Click on the image below
