News from the Schiafone Family

October 1, 2010

View a documentary film about Alström Syndrome produced by Journalism students at Ryerson University in an effort to explain “The Monster Disease“.

http://rbnonline.ca/media/8225/

Families from around the world

May 9, 2013

ASI is on-site and ready to go

May 8, 2013

It’s finally time!!!

April 30, 2013

Lubbock family copes with rare genetic disease

February 5, 2013

A Call for Items for the ASI Silent Auction!

February 1, 2013

Drop by Drop, Lubbock Family Makes a $30,000 Lake for Rare Disease

January 31, 2013

Happy Holidays to All from Alström Syndrome International!

December 21, 2012

ASI Family Conference

December 1, 2012

BJ receives successful heart-lung transplant !!

October 12, 2012

Two runners for ASI in the New York City Marathon

October 4, 2012