Aspirin Social Innovation Award 2016!
Aspirin Social Innovation Award: Share & Vote Now Aspirin Social Innovation Award 2016! With this prestigious jury award the Bayer foundation honors every year the 5 most promising social impact innovators from health and food/nutrition related areas worldwide. The Genetic Alliance is one of our 25 nominees in 2016 for The Platform for Engaging Everyone Responsibly […]
Jan’s Story (from the Bangor Daily News)
This is a reproduction of Jan’s Story, found on the Bangor Daily News. SOMESVILLE, ME – Jan Davis Marshall of Somesville, ME died on September 6, 2016 , leaving her wide network of family, friends and the genetics research community at Jackson Laboratory stunned by her passing. Her dynamic life began in western New York […]
Celebration of Life for Jan Marshall
Hello Friends, Earlier I had indicated that plans to celebrate Jan’s life would be postponed until after both the A-Team Retreat and the GBMC Clinic. However, in part because so many A-Teamers and a number of Alstrom parents will be here next weekend and because many of our Deck House friends are nearby, and certainly […]
From Robin Marshall to All ASI Families
Dear Friends, Thanks for the avalanche of mail and messages. I’m not so good at talking/speaking yet, so I’m writing. This morning my son-in law, Richie, and/or I lost it over the coffee maker, which Jan always sets up, and avocados, which Jan always makes into her special guac. Lily (now 7), our younger granddaughter, […]
A Tragic Message from the ASI Team
All, The evening of September 6th, Jan Marshall, the Chair, Scientific Advisory Board and Board Member of Alström Syndrome International passed away quickly to unforeseen health issues. Jan was truly the heart of ASI, and her loss will be very challenging to overcome. She was our mentor, “Mama”, the point of solace, advice, and support for thousands […]
Call for Photos!
Call for photos! If you have photos from the recent conference in Plymouth, MA, now you can share them! Follow the link and instructions below to send your photos to ASI for inclusion in the photo library! Send Photos to ASI for Uploading To send your photos to ASI for inclusion in the library, simply […]
Alström Syndrome International Represented at Precision Medicine Summit
Washington, DC (February 25, 2016) – Alström Syndrome International, a member of the Community Engaged Network for All (CENA), is represented at the Precision Medicine Initiative Summit being hosted by President Obama today! Amidst several other ‘health data flow’ announcements, Sharon Terry, CENA Principal Investigator, will announce that the Patient Powered Research Networks (PPRN) of […]
Conference Agenda and Schedules now Online!
We have added some new files and pages so that you have early access to all of the activities and the full conference schedule. We also have included links to the websites for all of our activities at this year’s conference. The schedules are available as both HTML or PDF, so you can print them, […]
RARE DISEASE DAY
FEBRUARY 29, 2016
Alström Syndrome International Represented at Precision Medicine Summit with President Obama
PRESS RELEASE 2-25-16 ALSTRÖM SYNDROME INTERNATIONAL 14 Whitney Farm Road Mount Desert, ME 04660 Voice: 207.244.7043 • Fax: 207.244.7678 E-mail: in**@al*****.org • https://www.alstrom.org Alström Syndrome International Represented at Precision Medicine Summit with President Obama Washington, DC (February 25, 2016) – Alström Syndrome International, a member of the Community Engaged Network for All (CENA), is represented […]
