Jette’s Story
This is a video shared by the Bosma family from Holland. They are the proud parents of a beautiful daughter Jette, 19 months old, who is affected with Alstrom Syndrome. The first six months of her life she was hospitalized because of her cardiomyopathy and nystagmus, and other serious problems. Jette has had a tough […]
Millie’s Story
This is a short film made by Michelle Hough, from the UK. It is set to Portia’s Song from Friends and Heroes and features her wonderful daughter Millie and her story from birth to now. Millie was in intensive care at 5 1/2 weeks with heart failure and the road since has been a very […]
British Marque Car Club Fund Raiser in Northport, ME
August 26 – 28 witnessed the 9th British Marque Car Club Rally in Northport, ME and ASI was chosen as the designated charity! A successful event by anyone’s standards, members of ASI were privileged to be invited to the opening night banquet, and Katelyn Denbow spoke to a captivated crowd about ASI and Alström Syndrome. […]
Dancing Attendees at the ASI Turkish Family Conference!
1st Annual Angling for Alström a Wonderful Success!
If someone had told me 6 months ago how much work was involved in planning a fundraiser like the 1st Annual Angling for Alström, I’m not sure I would have stuck with the plan and made it to July 3. But WOW, I’m sure glad I did! The day began at 7am with the sun […]
Amanda inducted into National Honor Society
April, 2011. Amanda Fee has been recently inducted into the National Honor Society! Here is a photo of Amanda accepting her award at her High School in Minnesota. Congratulations Amanda!!
