1st Annual Gala & Silent Auction in Good Will-Hinckley, ME
Our 1st Annual Gala & Silent Auction was Saturday, March 23rd in Good Will-Hinckley, ME. Thanks to everyone’s generosity we were able to raise over $14,000 for Alström Syndrome! The day of the Gala it snowed about 22 inches. We still had a great turnout at our Gala even with the weather. We greatly appreciate […]
10th Alstrom Syndrome International Family Conference, Scientific Symposium
It is with great joy after more than 3-years, with the COVID pandemic mostly behind us, that we all now join together in support of the Alström community for the 10th Alström Syndrome International Family Conference and Scientific Symposium! During the following 4-days you will have the opportunity to meet family members new to Alström […]
Updated Conference Information!!!
Hi All, We have updated our Galveston Conference information including silent auction details, tentative schedule, and transportation details! See all Conference Information
Don’t Miss Out on the Early Bird Special!!!
Don’t miss it! Pay Now: Early Bird Special! Register by January 31, 2019 and receive a 10% discount on registration costs! Register Now to enjoy the Early Bird savings!
Conference Agenda and Schedules now Online!
We have added some new files and pages so that you have early access to all of the activities and the full conference schedule. We also have included links to the websites for all of our activities at this year’s conference. The schedules are available as both HTML or PDF, so you can print them, […]
It’s finally time!!!
We are extremely excited that the 7th Alstrom Syndrome Family and Medical Conference is starting up on May 9th!, just a few short days away! We are looking forward to seeing old friends, making new ones, and enjoying all the goings on we have planned in America’s Home Town, Plymouth, MA. If you’re attending the […]
2nd Annual Angling for Alstrom is August 4th!
Gina Denbow has done it again. While being a full time mother and teacher, she has managed to pull together one of the highlights of my summer: The 2nd Annual Angling for Alstrom bass tournament in Woodlands, ME! As an avid fisherman and a volunteer for Alstrom Syndrome International, this is an exceptionally exciting event […]
Skiing Facts – by Lauren (age 10)
Skiing Facts By Lauren – Age 10 Do you want to go skiing? First you need skis, boots, and a helmet. If you can’t see or can’t hear, you need extra equipment. You might need an FM system or an extra helper, or a bamboo pole. Your guide helps you go down the slope to […]
Gabe Iacovino – persistence!
I would like to share a story about the success and determination of a child with Alstrom Syndrome in the hopes that not only that it may not only inspire but assist others whose lives have been affected by this disease. Aside from the physical manifestations of Alstrom’s and the severe medical complications that arise […]
Inaugural Regional Reunion a Success
Fourteen families were represented at the SE Regional Family Reunion held December 2-4, 2011 at the Unicoi Lodge in Helen, Georgia, site of our International Conference in 2010. Although there was little formal structure, it is fair to say that a theme of “Things Have Changed” united the informal presentations that were made and a […]
