Vote for Alstrom Angels to win a $10,000 donation for research!
CitiBank in Lubbock Texas will donate $10,000 to the winning charity. LET’S MAKE SURE THAT ALSTROM ANGELS IS THAT CHARITY! Keep those votes coming Alstrom Land! Alstrom Angels is currently in first place – You can vote once per day for each of your email addresses. Click here and VOTE AGAIN today: https://www.citybankonline.com/communityrewards#rewards-form
International Rare Disease Day 2014
Today is International Rare Disease Day! Spread the word, raise awareness for Alström Syndrome. Wishing you all a productive day for our cause!! Rare Disease Day 2014
ASI Awarded PCORI (Patient-Centered Outcomes Research) Contract
Hello Everyone!It’s always nice to be able to send along really good news. Yesterday, the Genetic Alliance and ten rare disorder partners were awarded a large contract by PCORI (Patient-Centered-Outcomes-Research-Institute). Although we often measure progress by the drop, this is a whole bucket, and it’s making a very big splash too! We will be in […]
It’s finally time!!!
We are extremely excited that the 7th Alstrom Syndrome Family and Medical Conference is starting up on May 9th!, just a few short days away! We are looking forward to seeing old friends, making new ones, and enjoying all the goings on we have planned in America’s Home Town, Plymouth, MA. If you’re attending the […]
2nd Annual Angling for Alstrom is August 4th!
Gina Denbow has done it again. While being a full time mother and teacher, she has managed to pull together one of the highlights of my summer: The 2nd Annual Angling for Alstrom bass tournament in Woodlands, ME! As an avid fisherman and a volunteer for Alstrom Syndrome International, this is an exceptionally exciting event […]
2013 ASI Family Conference and Scientific Symposium
7th ALSTROM SYNDROME INTERNATIONAL FAMILY CONFERENCE AND SCIENTIFIC SYMPOSIUM The 7th Alstrom Syndrome International Family Conference and Scientific Symposium will be held in at the Radisson in Plymouth, Massachusetts, USA. Families and professionals from around the world will attend the Conference. Medical professionals and scientists will hold Symposia on Thursday, May 9th and Saturday May11th, […]
A must see and hear-Jamie Seeger Hayden Piano Concerto in D
This is a video of Jamie playing a movement of Joesph Hayden’s Piano Concerto in D with her piano teacher. I hope you enjoy the performance. Don’t miss this!!
To All ASI Families and Friends
You’ve probably been wondering why you’ve not received an ASI newsletter lately, not since the spring 2011 issue. You may be wondering if the ASI newsletters will still be published. Well, the Foor family hasn’t quit our publishing commitment with ASI for the newsletters, we’ve just been extremely busy and the summer months have just […]
Alström Syndrome International needs your help!
If you have a Facebook account, this message is for you! ASI has entered a contest sponsored by Vivint, Inc for a chance to win. We need votes of endorsement from you and your friends, families, networks! Now in Phase 2, ASI qualifies for matching any donations made by individuals up to $2,500. We can […]
Alström Syndrome Turkey and ASI to Co-Host Family Meeting
Thanks to the generosity of the Coca-Cola Foundation and to a matching personal contribution by its Chairman, Mr. Muhtar Kent, ASI has been able to partner with patients, families, treating physicians, and researchers in Turkey to host a Turkish Family Meeting this June 29-July 2 in Bolu, Turkey at Abant Izzet Baysal University. Dr. Koksal […]
